The Willing Sacrifice for Autism Treatment

Joshua’s weekly calendar is starting to fill up and I’m realizing that although I know that all his therapy is good for him, it’s also, honestly hard on me.  I am reminded of the vision that the Lord gave me, when we first started down this road of autism treatment, of Hannah in the Old Testament, giving her young son, Samuel to Eli, the priest,  after dedicating him to the Lord who answered her prayer for a son.  Considering that I am a home schooling mom, it has been challenging for me to send my youngest child away to school through out the day while his siblings are home doing school.  I don’t know about other mothers of autistic children, but I miss him and wish things were different for him so I can teach him at home, too.  I am continuing to learn not to be selfish and make these sacrifices for Joshua, who is God’s child first and foremost. I know my limits and I simply can’t do it all and am so grateful that the Lord is filling in all the gaps for him.  Joshua is precious to our Lord, even more so as He created him.  He knows what Joshua needs and He knows what our whole family needs as well.

As Joshua’s assessments have indicated, he is in need of all this autism treatment and is already responding positively to everything we are doing with him.  Now, we are filling up the hours after school with therapy, with IBI starting at 2 afternoons a week, speech therapy on Tuesday afternoons and physical therapy on Thursday afternoons.  We are also going to have a developmental therapist work with him during Religious Education classes on Wednesday evenings and perhaps even on Saturdays.  This is more intense, than we have experienced before as his school program is also intensely working with him.

At the same time, I am continuing to work on his dietary needs and working with his DAN doctor to ensure that all this treatment can have the best results for him by getting his body completely healthy and running as it should.  He still needs to get some labs done, which cost $152 and we are having to save up for this as our insurance doesn’t cover the particular lab that is used, and we are also trying to make sure we are able to get the supplements he needs.  Thankfully, we have the $1800  iLS equipment from the study he was a part of last year, and we will be using that more consistently, too,  as there was obvious improvement when he used it.  The IBI therapists and his physical therapist, will incorporate it in their work with him, which will be such a blessing, both for him and for me.  I have a hard time getting his cooperation when working with him.

Joshua being goofy when time for iLs treatment

The cost of autism treatment is quite expensive:  the Katie Beckett budget he was given totals $29,500 for a year.  Medicaid and our insurance are covering his Speech, Physical and Occupational Therapy expenses.   Fortunately, all we are needing to focus on is the out of pocket expenses of his dietary/supplementary needs and any other biomedical treatments for autism we deem to be a good fit for him and causes no harm.  Even this is a struggle for a one income family.  Diagnostics is a huge part of discovering what is going on in his body I am always interested in seeing what kind of alternative treatments there are that can help him recover.  I only wish that insurance would cover all of the diagnostics and alternative treatments that we would like to get done.  It makes me sad, really, that insurance will pay for medicating kids like Joshua, which often cause more harm than good with all the side effects, and their difficulty in processing toxins.  Although I can understand the feelings of desperation and hopelessness with some of the challenging behaviors and health issues,  we, as parents, should be afforded more choice in the types of treatments we can offer for our kids that insurance will pay for.  I’m not the “pill for every ill” type.   Our family doesn’t go to the doctor very much as we are relatively pretty healthy, but why couldn’t the premiums we pay go toward treatments we think would be the most beneficial to at least try?  The medical establishment and insurance companies, of course, have more confidence in treatments that are scientifically proven to help, but there are plenty of alternative treatments for autism out there that also help, and the science behind proving that is still in the works, sometimes simply looking for funding.

I was encouraged, though, discovering just yesterday that FINALLY, the AAP (American Academy of Pediatrics) is FINALLY admitting a Gut-Brain Connection with Autism!  Joshua certainly had GI issues that weren’t addressed until we started him on the GAPS diet and got a DAN doctor (also a pediatrician) to look at treating him for yeast in his belly.  He may still have some gut issues, despite the diet and probiotic he’s taking, thus his Naturopathic DAN doctor’s desire for a stool analysis.  Both pediatricians I spoke with since moving here showed no interest in exploring that issue.  Until we can afford the lab, though, Dr. Michael Whitney recommended acacia powder for Joshua, which may help him with the bloating or constipation he has been experiencing.  The list of supplements is growing, and we are hoping we can get the ones that will best help his body recover so he can make the most out of all these treatments we are blessed with.  With the way things are going in the economy with health care industry and State and National budget cuts, we know we may only have a limited amount of time.  The type of programs Joshua needs are usually the ones politicians like to manipulate the voters with.  Yes, I’m that cynical.  But that will be a topic to discuss on another post!

Another $upplement to add

This entry was posted on Friday, November 9th, 2012 at 5:08 pm and is filed under Autism Diet, Autism Resources, Autism Treatment, Diagnosing Autism, General Autism Info. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

 

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