Romans Chapter 5:1-8

Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ, through whom we have gained access (by faith) to this grace in which we stand, and we boast in hope of the glory of God.  Not only that, but we even boast of our afflictions, knowing that affliction produces endurance, and endurance, proven character, and proven character, hope, and hope does not disappoint, because the love of God has been poured out into our hearts through the holy Spirit that has been given to us. For Christ, while we were still helpless, yet died at the appointed time for the ungodly.  Indeed, only with difficulty does one die for a just person, though perhaps for a good person one might even find courage to die.   But God proves his love for us in that while we were still sinners Christ died for us.

Joshua resting up before his birthday party

This verse from Romans came to mind as I have been reflecting on the past 3 weeks.  Joshua’s 4th birthday was July 29th and we had a party for him on July 31st. It was a wonderful day with friends and family celebrating Joshua.  I had decided not to make him a birthday cake, since he couldn’t have one anyway.  I was thinking about making him some Coconut Flour Banana Muffins, but the oven broke the night before.  It didn’t phase me at all as I had made him some Sorbet, which was only fruit I had run through the food processor and frozen.  He was perfectly content to have a candle in it.  Actually, he was rather perplexed to see a candle in his sorbet as he seemed to just want to eat it, not have some fire burning in the middle of it!  The rest of the guests were happy with ice cream and cookies, and, as always, there was plenty of food, thanks to the many who contributed.

The neat thing about Joshua’s party is that it was relaxed, and, our main objective, for Joshua to enjoy himself while not getting overwhelmed, was met.  He was allowed just to “be” and really, opened just one gift.  His older sister, Sarah, opened the rest of the gifts for him by proxy and that was okay!  He came in and out of the room and looked at a few items and then either played with the guests, to some extent, or went outside or his room to play.  There were plenty of kids and adults just playing or visiting, both inside and out.  They all seemed to enjoy seeing Joshua and engaging with him where he was at, delighting in him.  What was neat is we didn’t have to have any games, or prizes or even birthday cake.  We were all there to celebrate Joshua and the gift he is.

The week after Joshua’s birthday, the kids and I participated in Vacation Bible School at our parish.  Everyone had a great time.  Joshua did remarkably well despite his challenges.  During the large group gatherings, he would sit with his group but once he got more comfortable, he would run around the perimeter if I didn’t catch him in time.  He never sang the songs with the group, but did repeat back some of the phrases that were chanted, yet instead of saying “Aye, aye, Captain!”  He would say, “Aye, aye, Captain Caillou!”, based on a cartoon character he watches on television.  Later, in the car, he would sing some of the songs we were learning.  During the small group activities, he marginally participated with assistance from his aide (me).  The hardest part he had to contend with was Bible Story as the room in which it was held had a ceiling fan.  Although it was not turned on, he was highly anxious and would sit in a chair with his head either hidden in my shoulder, or in the couch, averted from the fan entirely.   When Bible time was over, he would high tail it out of the room and head down the stairs.  It was too overwhelming for him, but I’m hoping he benefited some from the experience.  The activity he enjoyed the most, was the time they got to play on the playground.  In fact, each time we had to walk to the building, he would try to pull me toward the playground.  The other 4 and 5 year olds in his group were quite accepting of him and when I asked that they pray for him when he was scared of the ceiling fan, they asked appropriate questions and a few of the kids said a little prayer for him.  It was a blessing having him in the group, both for him and the other kids.

The kids and I went to the library recently and I got some books I had ordered.  One I am reading is called “A Real Boy:  A true story of autism, early intervention and recovery“, by Christina Adams and the other one is “Engaging Autism“, by Stanley I. Greenspan, M.D. and Serena Wieder, Ph.D.  The first book made me realize how much I need to advocate for Joshua and his educational plan this coming school year.  It has an ABA focus and I began to realize that Joshua needs some of that behavioral intervention to help with his toilet training, dressing himself, and proper eating etiquette, for example.   This lead me to write another e-mail to the Special Education Director of the District regarding wanting to know what Joshua’s school day was going to look like.  We ended the school year with a lot of questions, but Miss Katie and I both agreed, that Joshua needed to have a full day program.  With roughly 4 weeks before he starts school, I have no idea how the program is going to be re-vamped nor how it is going to help Joshua.  The Director had the Program Director of the main school that worked with special needs pre-schoolers call me as she was going to be over-seeing both the schools.  I gave the kind woman an overview of my impressions and concerns and she assured me that the autism specialist would observe Joshua, if she hadn’t already, and by the first week of September, we may have an idea how to proceed with his educational plan, and see what techniques would work best with him.

Joshua has also been getting more brave in venturing into our above ground swimming pool.  It’s quite a different experience since last year when he would throw boulders into the pool and kids would have to watch their heads and then go diving for rocks!  He pretty much hangs around on the ladder, but if it’s really hot and I want to brave the icy water and cool off, or if Sarah is in the pool, we will take him around and dip down once in a while, which he seems to enjoy, despite the vice grip.  While on the ladder, and in his life jacket, he will go up and down the ladder, while watching the kids and chattering to those around him.  It’s really a treat to see him interested in what the others are doing and a cause for hope as he improves.

Joshua wants to join in the fun!

Last Friday, Joshua had a check up appointment with Dr. Beighle regarding the yeast medicine and probiotic, and to go over the results of his blood work.  He has improved with his yeast medicine, is back on his cod liver oil (which helps with his eye contact), and in two weeks, after he’s done with his diflucan, he can start carnitine, the amino acid he is low in.  This amino acid just so happens to be associated with helping the body detoxify itself.  So, we will expect to see more die off as his body detoxifies.  We may see an increase in his autistic behavior before he gets better.  It’s good to keep that in mind, as well as a stock of Epsom salts and apple cider vinegar for some baths when he’s having a tough time!

And, finally, I was sent this link to a wonderful blog post from a friend who knows we are doing the GAPS diet of an interview of another mom doing the diet with her autistic child.  What an encouragement!  I want to encourage you to check out both sites as it gives more information and references to check out, as well as great recipes!  http://www.cheeseslave.com/ and http://www.healthhomehappy.com/ .  What a blessing to have so many resources to support our learning along this journey!

This entry was posted on Wednesday, August 25th, 2010 at 5:32 am and is filed under General Autism Info. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

4 Responses to “Romans Chapter 5:1-8”

  1. Tracee Says:

    Best of luck on your journey. The diet has been a miracle for us. We started it for my son in March 2008, at almost three years old, and he started regular kindergarten this week. I have our SCD recipes (which are all GAPS legal as well) posted on http://mrsedsresearchandrecipes.blogspot.com

    The diet will be hard at times, it’s not easy, but the pay off will be worth it.

  2. admin Says:

    Thank you, so much, Tracee! I will look forward to looking through your blog and getting more recipe ideas. I really appreciate your support. I will be linking your blog to my blog as soon as I learn how! God bless!

  3. christina adams Says:

    What a lovely writing voice you have. I came across your blog when I was searching for something, and saw your reference to my book. I’m so glad it may have helped you out and I wish you and your adorable son much success. Sincerely, Christina Adams (A Real Boy author)

  4. admin Says:

    Thank you, Christina, for your kind words and encouragement. I really appreciated all you shared in your book and am happy to see that Josh is benefiting from more treatment at school. It’s so important to let parents know that they have a powerful voice. backed up by the law, when advocating for their special needs child in the school system. I am grateful for you sharing your journey and look forward to seeing Joshua have the recovery your son now enjoys. God Bless you!

 

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