Owie, Owie!

Joshua went to his first Vision Therapy appointment today with his vision therapist, Samantha (Sam).  He will be going weekly.  Our insurance will pay for a lifetime maximum of 32 visits.  Since we don’t have the resources to pay $100 a session, we will be making the most of the time we have.  Sam showed me some simple things to do with Joshua to help him work on tracking objects with both eyes and it’s simply to move items we are giving him when he’s reaching for them.  He was playing with a stacking toy and she slowly moved the peg board as he was trying to place the wooden disc on the peg.  When he got overwhelmed, he would lay down on the ground, obstructing one eye.  We had a truly fascinating conversation about how vision is involved in about 90% of what we do (I think that was the percentage).

Sam used to work with Rosemary White and is quite familiar with working with autistic children.  She also did vision therapy herself with Dr. T for two years at Alderwood Vision Therapy Center before getting hired as a therapist.(http://www.alderwoodvisiontherapy.com/)

After Joshua’s Vision Therapy, I took him to pick up his siblings from my dear friend who also home schools.  She has agreed to watch the kids, and teach my girls on Mondays.  Her daughter had also gone through vision therapy and she sees the value in what we are trying to do.  We had to rush home from her house, feed Joshua and get him up to school.  I told Ms. Katie about what his vision therapy was like and the simple things to do to help him work on getting his eyes to work together.  Sam warned me, however, to be prepared for Josh to get tired after therapy and laying down to ground himself a bit more.  That was certainly the case.  He not only laid down in the waiting room after therapy, but when he got home from school, he was  irritable and laid down more as well.

Joshua’s Spio suit that his OT ordered came today, (www.spioworks.com) so I thought it would be a good idea to try it out.  Perhaps that would help him.   He didn’t seem to care for it.  It is a compression long sleeve shirt and compression pants that is supposed to help with his sensory processing issues.  Through out the evening, while I was making dinner, he would fuss for a while until we were able to distract him, and then ended up laying in the kitchen on the floor, where upon he then fell asleep.  I laid him on the futon until dinner and he cried and fussed after I woke him up.  He kept saying “Owie, owie!” and I was unable to determine what was bothering him other than getting used to the Spio.  So, I took it off him and he still fussed and cried.  It’s really tough trying to figure out what is bothering an autistic child with limited verbal ability!  Our solution to the problem was suggested by dear Sarah, my 10 year old:  “How about a bath?”  Bingo!  That was the perfect solution and was the only thing that ended up calming him down.  So, I don’t really know if it was the fatigue from the vision therapy today, or the Spio suit.  Talk about trial by error!

Overall, however, I am constantly amazed by all there is to learn and what various treatments are available to help autistic children.  The trick is to ensure that every family of autistic children have these therapies accessible so that each kid has the best possible chance to benefit and improve.  Autism treatment need not be only for those who have the resources.  That’s the frustrating thing I’m encountering in my discussions with others.  In fact, there is an organization in Washington, and there are others in other states, that are advocating for that very thing, for it be the law for autism treatments to be covered by any insurance.  Here is an organization I found out about that is advocating for that called, Washington Autism Advocacy.  (http://www.washingtonautismadvocacy.org)  Please support their efforts, and if from another state, see how you can support such organizations getting laws passed in your state.  It only makes sense to make the resources available to make use of early interventions, which have been shown to help autistic children improve and become productive members of society.

This entry was posted on Monday, March 29th, 2010 at 9:01 am and is filed under Autism Resources, Autism Treatment, General Autism Info, Sensory Integration Disorder. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.


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