“In the Promised Land, it will be so grand…”

Joshua likes to eat frozen peas for a snack and lately, he’s been lining up the peas (or nuts) on the table and re-enacting scenes from the Veggie Tales show, “Josh and the Big Wall”.  It’s quite funny hearing the quotes from the movie and hearing him sing the songs.  He has quite the recall, especially with anything music related.  I’m looking forward to seeing how God will use that gift in Josh’s life, for God’s glory and Joshua’s good.

Josh lining up his cashews with Rachel.

I must admit, however, that I have high hopes that Josh will recover.  I must have realistic expectations, however, which can be hard.  I’ve been reading from a great book I heard about off of a Facebook group I subscribed to about Autism.  There were two different links to interviews of families whose children recovered from autism utilizing a healing program developed by Dr. Kenneth Bock.  Dr. Bock wrote a very intriguing and helpful book called:  Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies, The Groundbreaking Program for the 4-A Disorders. http://www.amazon.com/Healing-New-Childhood-Epidemics-Groundbreaking/dp/0345494512/ref=sr_1_1?ie=UTF8&qid=1301978340&sr=8-1 I am now halfway through the book and just got to the section about the Healing Program.  He spoke at length about working in partnership with your child’s doctor, whether it’s a DAN doctor, or a family doctor open to integrative medicine, yet not imposing unrealistic expectations on the doctor, which would affect your working relationship, stating,

Hope is a great thing- it is a vital element in the long, difficult healing process- but expectation is the enemy of satisfaction, and therefore an obstacle  to the many incremental gains that must be made, and celebrated, in order to finally achieve recovery.  If you keep your hopes high and your expectations low, you will be better able to travel this journey of a thousand steps, which may one day take you to a destination that now lies even beyond your hopes. (pg. 195)

I must admit that I struggle with this.  I want Joshua to recover so badly and I do need to remember that this is a marathon and he is making progress.  I am grateful for the treatment team at his school and with his therapies.  I’m also grateful that his DAN doctor is familiar with this Healing Program and is willing to try it out with me.  There is so much for me to learn and one thing I am not very good at is how to balance everything and to take better care of myself.  Despite the busyness of our family life and my duties as a wife and mother, I need to manage my time better and, I need to remember that each member of our family has needs as well as our dear Josh, and that includes me.

One change we are starting to make is to transition everyone to a gluten free diet.  The book mentioned above convinced me that each of the kids would benefit from having a gluten free diet, and it wouldn’t hurt the parents either.  So, I’m working toward a modified GAPS diet for everyone in the family.  At the least, it will prevent any more moments of Joshua getting into crackers or something with gluten, that someone left unattended or not put away.  He’s an opportunist yet looks so darn cute with having been caught with something that’s not on his diet.  If it wasn’t for the fact that gluten really is not good for him and causes him harm, it would make me laugh.  Instead, it makes me incredibly  sad, as it takes a month to get out of his system…One positive consequence for him is more detox baths! Considering he’s been found under my bed a lot lately, I guess more baths would be a good thing!

This entry was posted on Tuesday, April 5th, 2011 at 8:37 am and is filed under Autism Diet, Autism Resources, Autism Treatment, General Autism Info. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

3 Responses to ““In the Promised Land, it will be so grand…””

  1. Kimberly Says:

    I’d LOVE to hear more about your modified GAPS. As soon as I finish the kids’ schoolyear June 17, we will be doing that also for our son with Asperger’s. I’m convinced it would be a good thing at least short-term for everyone anyway. I’m looking for folks who know about fermenting their own veggies – what do you do? Will the kids eat it?

    We are living overseas (with family in Bellevue). We were ‘home’ this spring and had 4 months to get all the testing and diagnostics we could get. I had a VERY similar experience with Children’s Hospital, and as of Feb. 2011 they say they are processing some 1,500 kids and I would need to wait 18 months! We went to UW Autism Clinic and were in and out in 4 weeks! God is good. We also got the preliminary DAN testing done and a list of food allergies to deal with. Somehow we were able to finish about 2 years of tests into 3 months, which really is miraculous.

    We did not have time for an OT assessment, and that is a missing piece we are trying to remedy from here in Africa. We’ll see. I have really loved reading about your journey and it is so helpful how you clearly explain all the school district stuff. That is a completely scary realm for me, but I won’t be there for another 18 months.

    Homeschooling our James has its ups and downs, but he has a really high IQ, so he really enjoys academics in general. That helps on the days when he ‘just can’t focus’ or is chewing on everything in sight. Thanks so much for blogging!

  2. admin Says:

    Hi, Kimberly! Thank you so much for posting. I’ve been weeding through spam, despite the filters, after the computer was knocked out of commission due to the subject matter of my blog!

    I’m so glad you were able to get testing done at the UW. I wish I would have done that when we first heard about it. It would have saved a lot of time and gotten him treatment sooner. However, every day, is learning about this condition and how best to help our kids. Our attitude is half the battle.

    The comment I made regarding a “modified GAPS” diet is more in regards to not being able to afford to do everything that is suggested right off. We went gluten free right away with Josh, and tried to keep to the list of acceptable foods for the diet, but not for the whole family…which leads to him getting into stuff he’s not supposed to. Case in point is the 5 Costco Oatmeal Raisin cookies he ate this morning while everyone was asleep, despite them being up on the fridge. I do try to follow the diet the best we can, however, but didn’t do things in the correct order to start with. The neat thing is there is a Yahoo group that is full of information. Josh wouldn’t drink the bone broth, for example, and I ended up putting broth in things he would eat. I also got a DAN doctor in the area, Dr. Cheryl Beighle in Silver Lake (Everett area) who supported our efforts and tested Josh and treated his yeast infection while prescribing a good yeast probiotic. What I’m realizing, slowly, is how change isn’t as over night as I’d like, but Josh is improving over all. Despite our stumbles along the way, when I think about how far he’s come in a year and a half, it’s pretty remarkable.

    If James has sensory issues read up on Sensory Processing Disorder. There are some things you can do to help at home depending upon what he is presenting. Another recommendation I would have, due to personal preference, as well as the dominate OT utilized with autistic kids is, reading what you can about DIR/Floortime by Dr. Stanley Greenspan. They even have a website, I believe, with videos. While you are out in the mission field, with some computer access, you can still get info that can help.

    I admire you for home schooling during all this, although, I’m sure you don’t have much of a choice. Josh is so squirrely at home but they are able to work with him at school utilizing ABA type of stuff. I still need to learn more about that.

    You will be in my prayers, Kimberly! Please keep me informed how James is doing. It is so refreshing to have someone read the blog that can actually benefit from our experience. God bless you and your family on your journey.

  3. Kimberly Says:

    HI again!

    Are you suggesting a GAPS yahoo group? I’d love to know which one! Thanks so much for your kind words! Your journey is definitely a help to me! We are only beginning.

    I will check out Floortime. I have a friend who is a new OT and she’s getting some resources together for me. So that’s our first step. The diet seems to be doing something small bit by bit. James doesn’t get into stuff on his own and we’re going to try to do it all together for the summer (as I think it will really help food allergies and ADD for others of us!).

    He’s never had trouble sleeping since he was a toddler, but he was so affected by the dairy opiate, now that we’ve been off for 6-8 weeks, he’s waking up to use the toilet for the first time in his life! He doesn’t get there most of the daytime, but I’ll take each little baby step! Now I need to think through the sleep issues too.

    Hugs from Congo!

 

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