Helping Joshua in Various Ways

So many things have been happening the last few months.  Where to start…  The last visit we had with Dr. Beighle was a great appointment where we were able to get some more tests on Joshua to see how he was doing with his Vitamin D levels as well as other allergies.  It turns out that Joshua’s Vitamin D levels are right where we want them to be with getting 2000 iu’s a day!  Josh did show an allergy to egg whites and corn.  The sad thing is, his diet involves eating eggs and due to GMO’s, corn ends up being in just about everything!  The allergy to eggs is probably causing the eczema, but his doctor thinks it is minor enough not to worry about it too much.  I also had his Vitamin A level tested due to his issue with looking at things sideways at times, but that level was within normal limits.  Something I have noticed, however, is that since I began increasing his Vitamin D, I removed the Cod Liver Oil, which had more of the Vitamin A.  I think I need to find a way to supplement it in some way, even if it’s in a small way.  I have also realized I have not been giving Josh as much of the fish oil as I should.  That’s one I’ve been forgetting and now that I’ve admitted that to the blogosphere, I will do better to give it consistently.  Hold me to it!

I was encouraged to hear that Dr. Beighle had read “Healing the New Childhood Epidemics:  Autism, ADHD, Asthma and Allergies” by Dr. Kenneth Bock, M.D., another DAN doctor (http://www.amazon.com/Healing-New-Childhood-Epidemics-Groundbreaking/dp/0345494512/ref=sr_1_1?ie=UTF8&qid=1308281141&sr=8-1) .  She agreed to see what other treatments would be recommended to try, based on the tests Dr. Bock utilized in treating autistic kids, and ultimately, based upon what Joshua’s body tells us that he is deficient in.  I brought up wanting to try using 5HTP, a natural supplement that helps the serotonin levels of those with anxiety and/or insomnia issues.  Josh did display some anxiety but not much insomnia.  On the supplement, he made some minor changes, but it’s hard to determine if it was as a result of the 5HTP or not.  We had to take him off of it for a time while Bryan was laid off, but will put him back on soon and see how he does.  In the mean time, the insomnia he didn’t have, is now presenting itself.  I can’t wait to get him back on this supplement and have him on it for a longer trial.  The challenge with this supplement, however, is he doesn’t like it as it comes in a capsule form and I have to try to mix it with water and give it to him on an empty stomach, in itself a difficult task!  He will take it when I give it in a syringe, but what a hassle and a half!  I will have to check with the doctor to see if it’s really necessary.

Another change is we are having to change insurance and will be putting the kids on the Washington State Medical Insurance.  This is to save money, honestly, as the cost of medical insurance is really frustrating, especially on a single income family.  The problem, however, is Joshua’s current treatment provider, doesn’t take State insurance.  So, this means he will need to go somewhere else and get on a waiting list.  I found a place, fortunately, not too far from us that will do the OT, but he most likely won’t get in until the Fall.  This means no Speech therapy this summer until I can find someone who takes State insurance, and hopefully that can happen before school gets back in session.  We are, however, hopeful that we can send him to a Summer Day camp with Rosemary White’s group.  She operates a DIR/Floortime 4 week Day Camp, 5 days a week for 3 hours a day ( http://www.rosemarywhitepediatricservices.com/summer_camps.html).   The challenge is going to be coming up with $2100 to pay for the camp.  We had applied for a grant with ACT Today, http://www.act-today.org/ but were not approved at this time.  Not being one to give up easily, we are not only saving as much as we can to pay for the camp, we are also running a fundraiser with ChipIn, which a friend told us about.  So, we are giving it a go!  If you, or anyone you know, are so inclined, please consider donating what you can to help send Joshua to camp (http://joshuawhughes.chipin.com/joshua-hughes-to-go-to-dirfloortime-camp ).  This camp is focused on helping Joshua not only communicate, but to learn and grow in his social skills.  We sent out e-mail and posted on face book and have already raised $590 after just 2 days!  We are so grateful and humbled by the care and support family and friends, far and wide, have for our Joshua.  Updates on how he is progressing will be posted here on the blog and on his Facebook Group page (Journey with Joshua).  Drop by and leave a note!

 

 

 

This entry was posted on Thursday, June 16th, 2011 at 3:37 am and is filed under Autism Diet, Autism Resources, Autism Treatment, General Autism Info. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

2 Responses to “Helping Joshua in Various Ways”

  1. Hether Klopping Says:

    What a journey with health insurance, Sheila. You must be so thankful to have found help through public education, even though it takes a summer break. Joshua has an adorable smile!

  2. admin Says:

    Thanks for your kind words, Hether. He is a cute kid and that smile has gotten him out of a lot of trouble. He’s so genuine and what you see is what you get! Yes, public education has been a blessing. I am grateful we have the summer camp to keep Joshua moving ahead and hope we can get him on the books in the Fall at the place that takes State insurance. If anything, I think that is the biggest disappointment that State insurance is not accepted at quite a few treatment facilities. If I had my preference, it would be for him to be able to continue with all the treatment we have sought out for him, however, it sure is a picture of real life and our need to teach him to adjust. That’s true to life, isn’t it? I know that God has things all under control, so I need to just keep pressing on and do my part.

 

Leave a Reply

You must be logged in to post a comment.