Fall changes


Joshua went along for the ride Trick or Treating,

enjoying eating an apple while Mommy got a work out!

It’s been quite a while since I’ve posted on our Journey with Joshua.  It’s a balancing act caring for a family of 6, taking Josh to his appointments, his older brother Michael to his, and the girls and Michael to their school activities.  Honestly, there are days I’m simply to tired.  Not that I don’t have a lot on my mind and there aren’t things I want to post about.  Not to mention, we had Michael’s 6th birthday to celebrate and more importantly, we’ve been distracted praying for our family friends’ college age daughter, Lorna, who had a terrible accident while at college, falling through a skylight while at some friends house after a singing gig.  She had sat on something covering the skylight, and fell 15 feet to the stairs below, breaking her back and hurting her neck and sustaining a head injury as well.  Lorna has over 870 people praying on the family’s Carepage and has come so far in the 3 weeks since the accident.  The positive news is, by the grace of God, she has a good chance of walking again!  Here is a link about Lorna so please keep her and her family in prayer: http://thedp.com/article/15-foot-fall-puts-junior-hup.

Lorna’s accident really puts things in perspective.   Lorna babysat for us before Joshua was born and is so talented, cheerful and bright.  The kids loved her.  She and her family moved to California due to medical needs of her family.  Her parents, Robin and Alison,  are wonderful friends and mentors, having home schooled their family of 6 kids, which  includes their beautiful son, Andrew,  who has Down’s Syndrom and Autism.  In fact, Dr. Robin Bernhoft, M.D. has a practice in Ojai, California in which he also does treatments for autistic children.   The focus of his clinic, Bernhoft Center of Advanced Medicine, is based on the “interaction of genetic susceptibility and modifiable environmental factors”, http://drbernhoft.com/.  Reading up on Dr. Bernhofts research, I think he’s right on with his theories about autism and it’s treatments.  Check out his website and contact him if you are interested in learning more about what he does.

Dr. Robin Bernhoft

So, what has Joshua been up to these last 7 weeks of school?  Well!  He continues to improve his potty training and he goes completely independently at school and in the community, getting himself on and off and handling his clothes.  At home there is some delay as, for some reason, he seeks Mommy out to use the bathroom.  Even in the middle of the night.  Today, however, he went potty at home, even without me, so perhaps we are turning a corner.  He has his IEP next Monday and I’ve gotten write ups from the three outside therapists as to his progress and goals, in order to facilitate folks working together.  Another high light was the two times Joshua actually waved goodbye to me when he got on his school bus.  It took me tapping on his window to get his attention, but he raised his hand and made a weak waving gesture, but I’m counting it! This was the first time he has ever waved to me.  What a gift!

Miss Katie told me of a funny antic Joshua did at school recently.  He loves to sing various songs he has learned and he was singing the Zoo Phonics, the Alphabet program he is learning at school.  The problem was they were doing another activity at the time and he wasn’t attending.  Katie gave Joshua a gentle squeeze in the lycra wrap thing they have for the kids and he was able to attend to the activity.  However, as soon as she released him, it was though he were taken off of pause and he started up with the alphabet, right where he left off.  The autism teacher continues to work with him to find out what are motivators are and I’m anxious to find out what the progress is on getting him to a full day program by December, as was told to me at the beginning of the school year.

One thing we have added nutritionally, has been starting Joshua on 4,000 IUs of Vitamin D, every day.  He’s been on it for the past 3 weeks and we’ve had one, minor scare as he got into it and gave himself a few dropper-fuls, as well as spilled some on the floor.  Joshua takes his medicine all too well, I’m afraid, and I have learned from my mistake and have his supplements up high and in a cupboard.  The good thing is, he’d have to take mega-doses for 6 months before he’d have an overdose.  So, no ill effects aside from a few messy bowel movements, but, that’s not guaranteed to have been the cause of that.  In regards to the vitamin D, a friend passed along the information to me, regarding a possible link between autism and vitamin D deficiency:  http://www.vitamindcouncil.org/health/autism/autism-information.shtml.  When Joshua was tested a year ago, he was on the low end of the normal range.  The question is:  What is Joshua’s optimal range?  To my knowledge, they didn’t test him on his D levels when we saw Dr. Beigle, although she would have, had I asked.  The only thing we’ve done differently is feed him Cod liver Oil for the past year.  I may have him get his blood level checked next time we are in to see the doctor as I am curious as to what they are at now.  The hesitancy I have, however, is with how traumatic it is for him (and me).  So, I am giving him 4,000 IU’s a day, based upon the information from this study.  It really makes some sense that he would need more Vitamin D as we are all deficient in the first place and if he’s needing the amino acid Carnitine to help his body detoxify, I wouldn’t be surprised he’d need help in other areas as well.  Again, I’m attempting to employ a “no harm” approach of trying things that could only help and not harm Joshua.  If the research is right, what would we have to lose but to give it a try and see if any improvement results.

I’m really excited to have Joshua’s IEP on Monday to not only share what is going on with Joshua outside of school, but to get help as to how to manage my Joshie Monkey who likes to climb up on the piano now, as well as over the gate at Sky Valley Education Center, that is intended to keep toddlers in the fenced off area.  We are going to have quite a year.  Any help we can get to help Joshua develop into his full potential, the better, while at the same time, keeping the Little Monkey safe!

This entry was posted on Saturday, November 6th, 2010 at 7:05 am and is filed under Autism Diet, Autism Resources, Autism Treatment, General Autism Info. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

 

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