Bio-medical Treatment: DAN Doctors are the way to go! Pt. 2

After such a terrible experience with Dr. Neff, I drove Joshua to his elementary school, crying most of the way.  I felt that Joshua was seen as a scientific experiment and he was far from that.  I was determined to fire Dr. Neff and did so.  When I called, I told the receptionist I felt disrespected and had a negative experience with Dr. Neff and per a recommendation, asked to have Joshua’s care be transfered to Dr. Craddock, in the same clinic.  I’m hopeful he will be easier to work with, but if not, I have other doctors to try, now that I have more connections in the area.  Despite the “trauma” I experienced, I know that God will use it, hopefully, not only for us, but for someone else to benefit from.


What is remarkable to me is how territorial the medical establishment can be, in a sense.  I don’t see why biomedical approaches aren’t the norm, to be honest.  Integrative medicine only makes sense to me.   Our experience with Dr. Whitney, a naturopath,  has been a polar opposite the one with Dr. Neff.  Even Dr. Beighle, a pediatrician in the Everett Clinic, practiced integrative medicine, or or a bio-medical approach.  Doctors who practice bio-medically seem to be a rare breed, but I feel I’ve been blessed as the doctors we have had for our family medicine have been supportive of this approach, overall.  Talking with other parents regarding their experience, there are those doctors who are open to looking at dietary change, for one,  and those who don’t pay it much mind, especially when it comes to autism, or other childhood conditions that have risen dramatically the last 20 years.   (I’m thinking of Dr. Kenneth Bock’s 4 -A’s, autism, ADHD, asthma and allergies.  See here.)

Dr. Whitney wants to have Joshua get a stool sample test so we can see exactly what is going on down in his gut/intestines.  I called our insurance and of course, the lab he uses that does the best test for this is “out of network” with our insurance and we have to first pay a $1000 deductible a year, before they would pay 50%.  Dr. Neff was not remotely interested in doing any of the labs requested, as I had shown him the lab request.  He saw no need, despite me sharing that Joshua has had diarrhea recently with potatoes added to his diet as well as being constipated off and on, and Dr. Whitney noticed him being slightly bloated in the abdomen.  That fact on it’s own, spoke volumes to me.

Our last visit to Dr. Whitney, on Thursday, we went over some bio-medical treatment ideas to explore.  This will involve more lab work, of course, as well as deciding on a program to ensure he has a healthy gut and liver; an appropriate diet, which we are already doing (Dr. Whitney said the GAPS diet is one of the best out there); a parade of antifungals to look into; looking at  Hyperbolic Chamber Therapy; considering allergy testing (SET/NAET); Vitamin B12 shots; Chiropractic work up, involving cranial sacral work; comprehensive digestive stool analysis; OAT testing; Amino acid analysis; Urinary challenge metals/porphyrins; Imune titers to Measles; Food Allergy IGG panel; while considering numerous supplements to address deficits that his body and behavior is exhibiting.

Dr. Whitney has seen the most changes with kids with taking the Vitamin B 12 shots as well as the hyperbolic chamber treatments, and one other that I can’t remember, maybe the diet?  With cost being a factor, he recommends starting with one more supplement other than what we are already using:  Acacia Fiber, which can help with his tummy issues, in addition to the probiotic he is already taking, adding more things as we can afford it.  The Acacia Fiber costs about $20 a bag and lasts a few months.  Supplements can cost anywhere from $300 – $500 a month and including additional treatments, alternative therapies can ultimately cost up to $1000 a month.

There is also a cream that sells for about $45 that can increase the Glutathione in his body by putting it on his feet at night.  This blog I found explains a bit about what the cream does as it’s known to help the body to detoxify:

Overall, I’d like to ideally have as many tests done as makes sense, to truly see what is going on in his body.  The digestive stool analysis is going to end up costing us out of pocket $152, and I don’t know when we can even afford to pay for that.  This has caused me to try to take time out of my day and see how to earn some money on the side, simply to pay for Joshua’s tests, alternative treatments and supplements.  Living on one income while still getting caught up from our move and trying to pay off some bills makes it impossible to do these, “extras”.  Bryan’s job is paying well but it is simply providing for our basics and getting us caught up.  He is trying to build up a small  business on the side, but that takes time, too, in seeing a decent profit outside of operating expenses.

So, this leads to a shift on my blog for Joshua.  In attempts to get more traffic, we are starting to expand our social network, which is a work in progress.  We are starting to add more things to make it marketable.  Bryan will be helping me with this in his limited spare time but I’m rather excited about it, especially if it means doing what I love, remaining home with the kids,  and sharing what I know.  I’m having the “faith of the Canaanite Woman” to do whatever I can to raise the money for Joshua’s treatment, while continuing to pass along what we have been learning during this journey, in the hopes that it can help others along the way.  Perhaps some folks who happen upon this blog will find something that gives them hope or encourages them in some way; perhaps something to try or some information that they can use to help their child.  That has been my purpose, especially as a former Children’s Mental Health worker, to pass along what I am learning and to seek out what can give a parent some hope that their child can improve.  While they are searching out the cause of autism, there is also the search for a cure, or at the least, treatments to help kids get healthier and thus, improve their symptoms.  In many cases, as even documented in Dr. Bock’s book, kids are recovering.  I am grateful that so many are not giving up, just as I am grateful people don’t give up for cancer treatments and finding a cure for that and other conditions that affect the human condition.  It only makes sense that with the rates going up, this is an epidemic!  1 out of 88 kids!  1 out of 65 boys!  And, as I told Dr. Neff, even if there is a genetic cause, it doesn’t mean we don’t try to do what we can to help the body operate at it’s absolute potential!  These kids are our future!  At the very least, don’t we want early intervention to mean something and to take the most effect?

My goal is for Joshua’s treatment to have the best chance of being effective and having his body as completely healthy as it can be, can only help make all the effort and expense of the behavioral approaches worthwhile.  I know Joshua is worth it, and so are the countless 1/88 kids.  We certainly want Joshua to be a contributing member of society, just as any other parent wants for their child.  Please, feel free to pass along this blog to anyone who would benefit from what is written, to offer them some hope.  It reminds me of this verse in Romans 5:1-5

Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ, through whom we have gained access [by faith] to this grace in which we stand, and we boast in hope of the glory of God.  Not only that, but we even boast of our afflictions, knowing that affliction produces endurance,  and endurance, proven character, and proven character, hope, and hope does not disappoint, because the love of God has been poured out into our hearts through the holy Spirit that has been given to us.

Our kids are worth it.  All the hard work we put into them, and all the hard work these kids must do to recover is worth it.  God is there with us, along the way, guiding us, strengthening us, encouraging us and building us up for a greater purpose.





This entry was posted on Monday, October 1st, 2012 at 5:32 am and is filed under Autism Diet, Autism Resources, Autism Treatment, General Autism Info. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.


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